Wednesday, October 27, 2010

So tiny, so sweet and innocent. What an amazing experience. after 9 months of waiting, not knowing what to expect, now you are here and we are overwhelmed with so many feelings; you are More perfect than I could have ever hoped. More beautiful than I could have ever dreamed.More precious than I could have ever imagined. & I love you more than I could have EVER known.

It's hard to imagine that this was exactly what I was feeling just a little over a year ago. October 24, 2009 at 5:35 p.m. was the day that changed our lives forever.


Jonovan you came into this world and showed us a kind of love that we never even knew was possible. It has now been 1 whole year and we can't believe how fast it has went by. Everything that we have been through this year has made our little family so strong and we wouldn't feel this way without you! Aside from all of the struggles that you had to face so soon, this year has been the best year of my life. You are still so small but, you truly are the most AMAZING person I know. Every morning I wake up wondering how I could ever love you more than I already do. Then, there it is... a look, a smile, a laugh...and somehow I just do!

On Saturday, October 23rd, 2010 we celebrated your birthday at the San Luis Valley Pizza Company here in Alamosa with numerous friends and family members. Pizza is your all time favorite food so you sat there very content and ate 2 whole pieces of pizza on your own. You had your very own birthday cake to your self and managed to demolish it quick. This month you finally learned to use the sippy-cup! So you were able to have a cup of 1/2 juice and 1/2 water with your lunch. It was a great party and you were really happy for the whole thing. You love to dance so for most of the party you sat in your high chair just dancing away and eating pizza. Everyone thought it was just so cute!  Here are some pictures from your party.










We took you for lunch at Calvillo's on the day of your birthday and you didn't like it too much when then sang happy birthday to you!


Jonovan Ramon Gutierrez, we made it through our first year together and we are VERY fortunate that we have many more to come! Your birthday was a day for us to celebrate you being here with us, being happy, and being healthy! Daddy and I love you from the very bottom of our hearts. You are the best gift god could have ever given us. We will continue to love you forever and ever!

Monday, September 27, 2010

Time Flies!

Wow it has now been over a month since my last post, where did the month of September go? I've been super busy now that I have officially started all of my classes. Keeping up with an 11 month old and trying to do course work is quite the challenge. Jonovan has also starting going back to daycare 2 days a week for half a day. The first day back was a lot harder on me than it was on him (it's a mom thing)! Speaking of my 11 month old, I just can't believe by little baby is going to be a whole year old next month!! He's been through so much his first year than some people go through their whole life! This is why his 1st birthday will be a very very special celebration to our little family :) We had pretty good news at the last cardiologist appointment. Jonovan finally doesn't have to take ANY medications anymore!! He still has a very small leak in his heart but with more time, love, and prayers it should close up soon. As far as his weight gain goes little man is a whopping 16 pounds now ;) Still not as much as they would like to see him gain but this is the way the cardiologist explained it to me: "If you were not able to move around for almost a whole year, you had surgery, and were now able to move around freely without getting exhausted would you want to move and explore or eat?" Moving is what my answer would be and he explained that this is exactly how Jonovan feels. He said to give him time and he'll eventually catch up on his weight, although, it could take up until he's 18 months to totally catch up. Right now I'm just taking things as they come and kind of "goin with the flow". The past few weeks Ramon and I have notice that he has a huge appetite now. He loves solid foods. Sausage, noodles, pizza, peas, watermelon, yogurt, crackers, bananas, and beans are just a few of his favorites. He's still having a hard time getting the concept of the sippy-cup but I know he'll catch on soon. Still not walking but he has started to wear some cute little shoes now that give him more support to stand up and walk along the furniture. Also, can we say MAMAS BOY!?!? Now that it is just the two of us during the day he's grown closer to me than ever and I love feeling so loved :) But the moment that Ramon walks in the door for lunch or after work, Jono crawls up to him as fast as he can so that daddy can scoop him up in his arms. I say this all the time, but, I am so lucky.  A few more things to add...Jonovan now has his two bottom teeth! We thought they'd never come in. His new favorite toy is the toilet paper in the bathroom. And now that he's gotten bigger and able to move around easier it's so much fun to watch him play with his cousin Leela and his best bud Joseph (these two little guys do everything together from teething to dirty diapers. Having a buddy to get into trouble with makes things that much more exciting!).
Picture time.....

Jono & Daddy making a band. This is serious!!


We went to visit Uncle Dennis and Auntie Krystal and we noticed that the kiddos were just a lil too quiet. Found them in the kitchen eating a box of cereal.

First time at the Sand Dunes. He loved it!!

Grabbin a bite to eat before cousin Anna's wedding in La Junta

It's sideways but I just love this picture

Someday I'll be big enough to reach those pedals

Cookie Monster

Leela is stealing the top blankie and Jono is not sharing the bottom one. This is just the begining with these two!

Jonovan and Leela looking out the door. So desperatley wanting to go play with the older kids outside

He can stand like this but just doesn't have the confidence to stand up completely unsupported

Messes! Let's just say we have to keep the bathroom door shut all the time now

Thursday, August 26, 2010

Tough times never last, tough people do

If you notice that I haven't been posting as much as a usually do it's because I just can't keep up with this little guy! Jonovan is full of energy and coming at us full force!! We go to Colorado Springs one week from today for another visit to the cardiologist to check on Jono's progress since the surgery. My guess and hopes are that they will tell us everything is going great. He is now mastering how to play catch and has gotten really good at throwing the ball. This is the first time he has learned something by repeating actions from Ramon and I. He also has started learning how to dance around for the Mickey Mouse song which, might I add, is just such a cute sight! Jonovan also learned how to drink from a straw yesterday so that means he's going to want to drink my water the whole time everytime that we go out to eat! Honestly right now, there's not a thing I can complain about! I'm enjoying all of the time that I get to spend with him now that I am home. We have so much fun!! I really am so very lucky and blessed to have the recovery going so smoothly.

Trying on Daddy's hard hat. He literally waited and posed for this picture with that smile on his face until we were able to turn the camera on. Soo funny!


Eating a pickle. Yum!


Trying out the new car Mommy & Daddy bought me!


Helping mommy do laundry


Eating some yummy ham. He's trying a lot of new solid foods now.

Thursday, August 19, 2010

Our first week back home has been pretty busy but lots of fun. Jonovan is continuing to take off and he keeps getting stronger. He is drinking 6 ounce bottles now which is a HUGE accomplishment. I remember a few months back almost forcing him to eat so now when I see him drink such a big bottle in a hurry, it amazes me! He is also eating lots of table food. Anything with pasta or noodles is his favorite! He is crawling around faster than ever before and getting into all those fun things that he's not supposed to. The only time that our living room is clean now is after 9 p.m. when our lil monster is asleep. The rest of the day the floor is scattered with toys and his favorite blankie. Before the surgery we knew that Jonovan's heart condition was affecting him a lot but now that we have had the surgery done, we can notice a major difference. One difference we've noticed is that his skin color is different. His skin is still light but it's not as pale as it used to be. He just looks and acts like he has so much more life in him. I'm almost having a hard time keeping up with him. He is into everything everywhere!!! But i'm not complaining. Having our family go through all of this made us realize that it is the little things you don't even think of that you take for granted. We have come to appreciate all the times that we're chasing Jono around the house keeping him out of things. I am having such a blast staying home with him every day and having some good, quality Jonovan time!

Playing outside


Trying to keep his foot lifted because the grass in too pokey!


He discovered that the grass really isn't that bad!


And there he is using the wall to stand up. Such a big boy!
Notice how much more hair he has gotten.

Thursday, August 12, 2010

I feel like the luckiest Mommy in the world when....

I get to wake up and see this sweet face everyday!!


We are sitting in our hotel room for what will hopefully be our last night in Denver. I didn't realize how homesick I was going to be until I had actually been here for a while. Jonovan is still doing great today. He's actually crawling all around the room, standing up on things, and getting into everything that is within his reach. He is not eating as much as he was the day we left the hospital, but we are assuming that it just takes some time for him to eat like a baby his age should. This morning we took him to the Denver Zoo for the very first time! Daddy bought Jono a toy elephant that is just about the same size that he is. He was awake for the first half our or so and enjoyed the bit of animals he got to see. I think we've got a future animal lover on our hands, just like Uncle/Nino Dennis and his Auntie Britny :) Jono's first post operation visit is tomorrow morning at 10:30 in Colorado Springs. He will see his regular cardiologist, Dr. Runciman, for this. As long as things are still looking good, and we are sure they are, we will get to go home tomorrow!! We had no idea that Jonovan was going to heal and recover from the surgery so fast. When I asked the hospital how long I should pack our bags for I was told that the absolute earliest we would be leaving was 3 weeks after the operation. Our lil' man never ceases to amaze us!


Monkeying around and laughing at the zoo!





Jonovan is ready to go home too!

Wednesday, August 11, 2010

Last night

This will be a quick post because we are getting ready to leave the hospital!!! yay! We will still be in Denver until Jonovan has one post operation visit but Jono is so excited to get his iv and all those funny gadgets taken off of him. Last night was so much fun we played with Jonovan for hours and he was laughing and smiling just like he used to. Feeding him was something that we always struggled with before but this is no longer and issue because Jonovan is eating 4 yes 4 ounces every HOUR! He's keeping us on our toes for sure. Thanks again for all the love thoughts and prayers! :)

Eating Eating Eating!!


What a flirt!


Playing with Mom and Dad

Tuesday, August 10, 2010

Life is not measured by the number of breaths we take but by the moments that take our breath away...

Sitting here again just watching little man sleep. He's doing great today. He's eating really good and managing to keep everything he eats down. The results from his chest x-ray show that he still has fluid in his lungs but it has went down some. The medication that he takes to help with this is called lasix. Today they will start giving him the lasix three times a day orally instead of through the iv which is great for him. He hates getting his iv meds because it burns a little. He will continue to take this medication even when we go home for a while. This morning he had an echocardiogram (heart ultrasound) and we'll know the results of that soon. He is one smart little guy! Every time he sees a nurse walk in the room he starts to cry because he knows there about to bug him with something different. When they are leaving and walking out the door he gives them a big smile and waves bye-bye. We've had a couple nurses that have come in saying that rumor was that Jonovan is one of the cutest babies ever and they just had to come check him out for themselves. Little man is already such a flirt!! The nutritionist here at the hospital just started him on a high calorie mix of formula that will hopefully help him gain some weight now that his heart is repaired. We talked to the Dr. this morning and he said that Jono is doing so great they may even discharge him from the hospital tomorrow! It's completely relieving to know he is going down a healthy path. We will have to stay in Denver still until he has at least one post operation visit. We feel so excited that each day just gets better and better for him and we couldn't have done it without the tons of support and love we get from family and friends! We say this a lot but it truly is amazing how quick he is recovering. It has only been four days since surgery and he's back to his ornery ol' self.

Daddy says he looks like a ninja with these hospital pants on.
Mommy says he looks like a doctor.


Sittin' on mama's lap watching cartoons


Riding down the hallway in one of the Children's Hospital wagons
They let him off the monitors for a while so we could hold and play with him


Sleeping in his crib


Sucking on my blankie always makes things better!

Monday, August 9, 2010

If God brought you to it, he will bring you through it.

After reading one of the previous posts I also wanted to add that while in surgery the surgeon only found the ventricular septal defect (hole on the bottom). He said he looked closely and was not able to find an atrial septal defect. It could be possible that he never had one or that it actually closed on his own. The VSD that was closed was a bit bigger thank a nickel. This may not seem to terribly huge but when you think about it in comparison with the size of his heart (which is the size of one of his fists), it was huge. He found that one of the venticals actually started growing tissue over the VSD with could have been very dangerous and damaged the ventricals if it had grown more. It was a great decision to have this surgery done and have the defect repaired. The VSD in Jonovan's heart was causing 2.5 times the amount of blood the heart pumps to go back to his lungs. If we had decided to wait or not do the surgery at all it would have caused permanent damage to his lungs. I feel very thankful that god put us in the hands of a fantastic surgeon that was able to go in and fix Jono's heart with out any major complications. Our prayers were answered and it's such a great reminder to never give up or lose faith! If God brought you to it, he will bring you through it!!

Bubble baths are always fun

Jono's day is going pretty good. We are still waiting on the doctor to get the results from his x-ray and lab work. As far as we know right now he is doing great on his blood count. The pint of blood that was donated by Ramon was enough during the surgery that we don't think he'll be needing anymore.This afternoon we gave him a nice bubble bath and he loved it! The nurses can't get over what a smiley little guy he is. He is a total flirt and he hollers at anyone he sees walking past our door. After the bath they allowed him to stay off the monitors for a while so we got to take him to look out the window and just sit down, play, and cuddle with him. He ate one jar of carrots and he's held it down so far which is great! We talked to a dietician today and she would like for Jonovan to be gaining atleast one ounce a day before we go home. After eating and a few iv medications it was time for him to be put back in his crib and hooked up to the monitors. He took a really nice long nap for one hour and a half then he woke up in a lot of pain. I called his nurse in and she gave him some medication to help with this. He drank one bottle of half pedialyte half formula, watched The Goofy Movie on the Disney Channel, and now he's back asleep looking just like a little angel!


Look out Broncos here I come!
 I got my broken heart fixed and now there's nothin holding me back!



Wet lil' puppy dog



Looking way too much like daddy fast asleep!

Something Indescribable


I'm sitting here in our room next to Jonovan's crib just watching him sleep. I swear I could do this for hours!! Just listening to him breath is the most relaxing sound that god could have ever given me. He seems to be doing so much better now. Right now the things that the doctor's are watching are his lungs, his heart rate, his pulse oxygen level, and his eating habbits. From looking at his x-ray yesterday they found that he does still have some pulmonary hypertension. This is fluid going to his lungs. He was started on a medication for that and we are now waiting for a new x-ray to see if they're working. Every once in a while his heart rate will jump up really high but it does manage to get back down to normal. Also, his oxygen levels sometimes take a dip down low from time to time. At about 4 this morning his nurse came in the room and decided he needed to be put back on oxygen for a while. About 1 hour ago they took the mask away and he is doing well without it right now. As far as his eating goes, he still can't seem to hold anything down. Everytime we give him formula he vomits it all back up. We're now doing a mixture of 1/2 pedialyte 1/2 formula and he has kept 5 ounces of that down today. Aside from these complications he is being a total rockstar :) We look at him and just think how amazing it is that he had open heart surgery only 3 days ago! He's such a little champ! (that's what daddy calls him) 


Sleeping with one of his best pals Mickey Mouse

Sunday, August 8, 2010

Just to see you smile :)

There is a song that Ramon and I sing to Jonovan every morning. Good morning to you! Good morning to you! You are my sweet baby...Oh how I love you!!!  It never fails to make him smile even if he's still half asleep. Yesterday it seemed like there was nothing we could do to make Jonovan smile. This morning we got our very first smile from him since the operation! I have to say it was a GREAT feeling. We can see that we are slowly but surely getting our little boy back to normal. Today was a good day. Jonovan was transferred from cardiac intensive care to the 9th floor which is all cardiac children. He still has some spurts where he is in a lot of pain but his nurses are doing a pretty good job at keepin it controlled. The results from his x-ray this morning showed that he does have some fluid in his lungs so he is now on a new medication for this as well. He still has been vomiting since yesterday. We were able to give him his first sponge bath this morning and after this he was sound asleep for a nice long nap. Later in the afternoon we gave him another sponge bath because he vomited again and learned how to properly care for his incision. We dressed him in a cute little blue shirt that buttons up on the side and some little white hospital pants. This afternoon his nurse noticed that his heart rate starting going up, she informed the doctor, and they are now keeping a close eye on this. Jono has had many visitors which included family and friends of ours that live in Denver & also family and friends that traveled here to see him bringing many many gifts. He sure is one loved little guy. We still have many people calling & texting to check in on him and we appreciate every bit of it! Thank you for helping us stay strong & keep our lil sweet cheeks strong too! Now here's some pictures. It's amazing that he looks so good only two days after having surgery.



Playing with some hospital toys



New toy from Grandma Sadie & Grandpa Mike
(Notice no more oxygen!)



So serious!



And we caught one of those famous smiles on a picture!

Saturday, August 7, 2010

a few pics

Here are a few pics I forgot to post in the last one.


Here is Jonovan after getting some of the tubes taken out. So relaxed.



Here is a picture of him swinging right now as I type this. Isn't he cute :)